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The Participatory and Inclusive Autism Research Practice Guides provide researchers with the tools to produce end-user driven research that delivers practical outcomes and resource that benefit the community. These guides outline the benefits of participatory research and provide guidance to enhance the uptake and quality of participatory and inclusive research practices.

By understanding, recognising and valuing the lived experience of autistic people, their families and supporters, researchers can:

  • promote partnerships between researchers and community members, ensuring end-users have a say in the research that is done about them
  • produces research that is more relevant and beneficial to the community
  • improve participant recruitment
  • build community capacity and skills by meaningfully engaging end-users in the processes and practices of research.

Keep reading for more information about the Participatory and Inclusive Autism Research Practice Guides, or jump ahead to registration.

Autism CRC first released inclusive research practice guides and checklists for autism research in late 2014, and since then we have continued to review and revise our own internal practices by evaluating the nature and extent of autistic and broader autism community involvement in Autism CRC projects and initiatives. This version has benefited from the work of previous contributors, and has been further enhanced by more recent research, practice and the learnings.

What's in the guides?

The Participatory and Inclusive Autism Research Practice Guides contain an overview of important participatory research principles, concepts, and practices, followed by six focussed guides addressing both participatory and inclusive research. 

Participatory Research Practice Guides

The Participatory Research Practice Guides provide information and advice about producing research together with autistic people and other community members. There are three Participatory Research Practice Guides:

  1. Consulting with autistic people in research
  2. Co-producing research with autistic people
  3. Supporting autistic people to produce community-led research

Inclusive Research Practice Guides

The Inclusive Research Practice Guides provide information and advice about conducting research that is inclusive of and accessible to autistic people and other community members. There are three Inclusive Research Practice Guides:

  1. Involving autistic people as research participants
  2. Disseminating research findings
  3. Evaluating research process and impact

These valuable resources are available to everybody at no financial cost. We require people to provide us with some basic information about themselves, via registration, as this allows us to better understand, and report on, utilisation of this significant output.

Please consider making a voluntary donation to help us to continue to produce critically important resources for the autistic and autism communities. We are a registered charity, and all donations over AUD$2 are tax-deductible in Australia.

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