Closing soon - Now is the time to have your say
The Australian Autism Research Council (AARC) includes representatives of the autistic and broader autism communities, as well as service providers, health and education professionals, government managers, policy makers and researchers. The AARC has put together a draft set of autism research priorities.
An online survey and submissions process is now open.
We would like to know what you think about the draft research priorities outlined by the AARC. You can also tell us other research priorities that are important to you. Anyone can have their say by filling in the survey or sending in a submission.
Your involvement in the consultation process will help guide the future focus of autism research activities and research funding in Australia.
View the draft priorities
There are 2 ways to view the draft research priorities before you make your comments
- Download the Australian Autism Research Council: Draft Research Priorities for Consultation 2019
- Download the Easy Read version - includes pictures and larger text
Ways to have your say - consultation closes 30 June 2019
As an individual
Fill out our online survey or download an Easy Read version of our paper form. The easy read version of the survey uses simple language and pictures to help explain each question.
As an individual, organisation or group
Send us your submission
Consultation closes at midnight on 30 June 2019
Who we are - Australian Autism Research Council
The Australian Autism Research Council (AARC) was established to review and define national priorities for autism research and identify areas of research need for the autistic and autism communities. The AARC operates under the auspices of Autism CRC.
AARC includes representatives of the autistic and broader autism communities, as well as service providers, health and education professionals, government program managers and policy makers, and researchers.
The AARC has considered domestic and international commitments, and existing global and Australian surveys on autism research priorities. AARC has identified 7 broad research priority areas through this work, now we need to know what you think.
What happens next
This stage of the consultation process closes on 30 June 2019.
The next steps will be:
- A report on the survey results will be made available to the public
- The AARC will set up working groups to consider the feedback from the survey results and submissions
- A full report and final research priorities will be made publicly available
The final research priorities will help influence activities and funding by government. It will also guide research and development undertaken by non-government organisations and other industry members who provide programs and services for the autistic community.
Terms of Reference
The objective of the AARC is to provide a regular and organised mechanism to:
- Consult on the state of autism research in Australia (community-led)
- Identify priorities for autism research in an Australian context
- Report on priorities for autism research in Australia
- Inform funding strategies for autism research in Australia
As the core principle for operation of the AARC, the delivery of these objectives will be community-led – by autistic individuals, their families and allies who provide services and support – for the benefit of those communities and the Australian community as a whole.
The draft priorities for consultation were formulated under the following guiding principles:
Autistic People at the Centre
The priorities should be focused on assisting autistic people to discover what they want for their own lives and supporting them to achieve their goals.
Inclusive of all Autistic People
The priorities should reflect the full diversity of the autism spectrum, including autistic people living without formal diagnosis. Priorities should focus on challenges and issues and positive models of care being inclusive of: age, gender, LGBTIQA+, geography, ethnicity, co-occurring disability, socio-economic disadvantage, and Aboriginal and Torres Strait Islander individuals and families.
The research priorities should target areas that will create the most meaningful impact for autistic individuals and their families.
If you have any questions, you can contact our AARC Community Consultation team:
AARC Community Consultation
07 3377 0617