Australian Autism Research Council (AARC)

Image showing the status bar of the consultation
 

Closing soon - Now is the time to have your say

The Australian Autism Research Council (AARC) includes representatives of the autistic and broader autism communities, as well as service providers, health and education professionals, government managers, policy makers and researchers. The AARC has put together a draft set of autism research priorities

An online survey and submissions process is now open.

We would like to know what you think about the draft research priorities outlined by the AARC. You can also tell us other research priorities that are important to you. Anyone can have their say by filling in the survey or sending in a submission.

Your involvement in the consultation process will help guide the future focus of autism research activities and research funding in Australia.


View the draft priorities

There are 2 ways to view the draft research priorities before you make your comments

 
Infographic showing the Australian Autism Research Priorities. The three Core Research Priorities are Self/Health, Communication and Built Environment. These integrate with the Implementation Research Priorities, which cover the areas of education, health services, justice and employment

Ways to have your say - consultation closes 30 June 2019

 

As an individual

Fill out our online survey or download an Easy Read version of our paper form. The easy read version of the survey uses simple language and pictures to help explain each question.

Complete the standard online survey

Or

Complete the Easy Read online survey

Or

Download a paper form of the Easy Read survey

 

As an individual, organisation or group

Send us your submission 

Complete a submission

Consultation closes at midnight on 30 June 2019

 

Who we are - Australian Autism Research Council

The Australian Autism Research Council (AARC) was established to review and define national priorities for autism research and identify areas of research need for the autistic and autism communities. The AARC operates under the auspices of Autism CRC.

AARC includes representatives of the autistic and broader autism communities, as well as service providers, health and education professionals, government program managers and policy makers, and researchers. 

The AARC has considered domestic and international commitments, and existing global and Australian surveys on autism research priorities. AARC has identified 7 broad research priority areas through this work, now we need to know what you think.


What happens next

This stage of the consultation process closes on 30 June 2019.

The next steps will be:

  1. A report on the survey results will be made available to the public
  2. The AARC will set up working groups to consider the feedback from the survey results and submissions
  3. A full report and final research priorities will be made publicly available

The final research priorities will help influence activities and funding by government. It will also guide research and development undertaken by non-government organisations and other industry members who provide programs and services for the autistic community.


Terms of Reference

The objective of the AARC is to provide a regular and organised mechanism to:

  • Consult on the state of autism research in Australia (community-led)
  • Identify priorities for autism research in an Australian context
  • Report on priorities for autism research in Australia
  • Inform funding strategies for autism research in Australia

As the core principle for operation of the AARC, the delivery of these objectives will be community-led – by autistic individuals, their families and allies who provide services and support – for the benefit of those communities and the Australian community as a whole.


Guiding principles

The draft priorities for consultation were formulated under the following guiding principles:

Autistic People at the Centre

The priorities should be focused on assisting autistic people to discover what they want for their own lives and supporting them to achieve their goals.

Inclusive of all Autistic People

The priorities should reflect the full diversity of the autism spectrum, including autistic people living without formal diagnosis. Priorities should focus on challenges and issues and positive models of care being inclusive of: age, gender, LGBTIQA+, geography, ethnicity, co-occurring disability, socio-economic disadvantage, and Aboriginal and Torres Strait Islander individuals and families.

Impact

The research priorities should target areas that will create the most meaningful impact for autistic individuals and their families.


Contact us

If you have any questions, you can contact our AARC Community Consultation team:

AARC Community Consultation
07 3377 0617
aarc@autismcrc.com.au