Participatory and Inclusive Autism Research Practice Guides

Participatory and Inclusive Autism Research Practice Guides provide researchers with the tools to ensure end-user driven autism research delivers practical outcomes and resources that benefit the community. These guides outline the benefits of participatory research and provide guidance to enhance the uptake and quality of participatory and inclusive research practices.

Registering will give you access to six focused guides addressing both participatory and inclusive research.

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You can begin by reading Autism CRC's approach to participatory and inclusive research and an overview of key participatory research principles, concepts, and practices.

Contents

The Participatory and Inclusive Autism Research Practice Guides begin with an explanation of Autism CRC's approach to participatory and inclusive research and an overview of key participatory research principles, concepts, and practices. This overview is followed by six focused practice guides that address both participatory and inclusive research. 

Participatory Research Practice Guides

Three practice guides provide information and guidance on producing research in partnership with autistic people and other community members:

  1. Consulting with autistic people in research
  2. Co-producing research with autistic people
  3. Supporting autistic people to produce community-led research

Inclusive Research Practice Guides

Three practice guides provide information and guidance on conducting research that is inclusive of, and accessible to, autistic people and other community members:

  1. Involving autistic people as research participants
  2. Disseminating research findings
  3. Evaluating research process and impact

Overview of participatory research

The starting section of the guides provides an overview of participatory research, including Autism CRC's approach to participatory research.

Overview

Supporting resources

Supporting resources to help you apply participatory and inclusive research practices, including easy‑read information, a poster, webinar and podcast.

Find out more

Development of the guides

These resources form part of our commitment to build the research capacity within the autism research community and also to enhance the co-production skills of researchers across Australia and internationally.

First released in 2014,  we have continued to review and revise our own internal practices by evaluating the nature and extent of autistic and broader autism community involvement in Autism CRC projects and initiatives. This version has benefited from the work of previous contributors, and has been further enhanced by more recent research, practice and the learnings.

Citation

den Houting, J. (2021). Participatory and Inclusive Autism Research Practice Guides. Brisbane. Autism CRC.

Acknowledgements

This document supersedes the previous publication Inclusive Research Practice Guides and Checklists for Autism Spectrum (2014 & 2017). We acknowledge and thank the following people and organisations for the invaluable assistance in the development of this and previous publications:

  • Liz Pellicano
  • Members of the Autistic Self Advocacy Network of Australia and New Zealand (ASAN AUNZ)
  • Katharine Annear
  • Matthew Bennett
  • Ava-Ivy Evergreen
  • Julianne Higgins
  • Olivia Gatfield
  • Wenn Lawson
  • Jill Ashburner, Autism Queensland
  • Debra Costley, Autism Spectrum Australia (Aspect)
  • Marita Falkmer, Curtin University
  • Sylvia Roger AM