Community views survey to help inform Australian autism research priorities

Recruitment closed

You tell us! What do you want Australian autism research to focus on?

The Australasian Autism Research Council (AARC) is inviting adults who identify as autistic, parents, carers or family members of autistic people, and other key supporters (teachers, allied health professionals, psychologists) in Australia to share their thoughts and experiences.

In 2019, the AARC identified the top 10 areas for Australian autism researchers to focus on. In 2021, the AARC published a more detailed document on five of these areas, identifying specific questions that research needs to focus on to benefit the Autism community.

Survey closed midnight Sunday 23 July 2023.

Who can participate? 

  • adults who identify as autistic
  • parents, carers, or family members of autistic people 
  • key supporters such as teachers, allied health professionals, psychologists 

Participation is completely voluntary, you can either complete it yourself or with assistance from family members or support workers if you prefer. 

What will participation involve?

If you choose to take part, you will be asked to provide some information about yourself. This is so we can describe the group of people who shared their perspectives in this research. You will then be asked to think about the following five areas. These are five areas that the autism community identified as important for Australian research to focus on in 2019:

  • making built environments more accessible
  • choice in housing and living
  • health, disability and education services
  • family and carer support
  • gender, diversity and inclusion

For each of the five areas, we will ask you two key questions:

  1. What do you think are the main issues experienced by the autistic and autism community?
  2. What do you think should be the research priorities in that area?

For each of the five areas, we will explain the meaning of any key terms, and provide visual images as prompts to assist you in writing your responses. If you do not feel you are able to answer the questions in a specific section, you are able to skip that section. 

When completing the survey you can choose to save your responses and return at a later time. If you choose to do this, please make sure that you keep a note of the Return Key that you will be provided with as this is needed to re-enter your survey.

Contact information

For more information, please contact: 

Professor Dawn Adams

This work has been funded by Autism CRC, reviewed by an autistic member of the AARC, and co-produced with autistic researchers.