Help us learn about adult autism diagnosis

Recruitment closed

This study recruitment is now closed

Many people on the autism spectrum were not able to receive a diagnosis when they were children. Researchers at the University of New South Wales and Autism CRC would like to learn more about experiences of autism spectrum diagnosis (including Asperger’s syndrome) in adulthood.

Any adult with a formal diagnosis or thinks they may be on the autism spectrum is welcome to participate, but currently we are looking for adults who were diagnosed before age 18 and adults with intellectual disability and autism. We are also looking for carers/support persons who helped an adult get an autism diagnosis. You will have the option of taking part in an online survey, telling us your experiences in an interview, or both. The interview can be done in-person, via phone or online.

You will have the chance to win a $100 gift card for completing the survey, and/or a $60-$80 gift card for the interview depending on format.

For the survey, you will need to be:

  • 18 years or older
  • Have an autism spectrum diagnosis (including Asperger’s syndrome or PDD-NOS) or think you may be on the autism spectrum
  • Living in Australia
  • Or a carer of a person with intellectual disability who meets the above criteria

For the interview, you will need to be:

  • An adult or carer/support person of an adult who received an autism spectrum diagnosis in adulthood

More information

Download Easy Read Information Flyer

Download Information Flyer

If you have any questions, please contact Yunhe Huang at or 02 9385 3025.