Help us learn about adult autism diagnosis

Many people on the autism spectrum were not able to receive a diagnosis when they were children. Researchers at the University of New South Wales and Autism CRC would like to learn more about experiences of autism spectrum diagnosis (including Asperger’s syndrome) in adulthood.

We are looking for adults, including those with intellectual disability, who received their autism diagnosis at different ages from early childhood to late adulthood. We are also looking for carers and support persons of people diagnosed in adulthood. You will have the option of taking part in an online survey, telling us your experiences in an interview, or both. The interview can be done face-to-face, via phone, video conferencing, or text.

For the survey, you will need to be:

  • 18 years or older
  • Living in Australia
  • Have an autism spectrum diagnosis (including Asperger’s syndrome or PDD-NOS) or think you may be on the autism spectrum
  • Or a carer of a person with intellectual disability who meets the above criteria

For the interview, you will to be:

  • An adult or carer of an adult who received an autism spectrum diagnosis in adulthood


You can access the surveys using the following links:

More information

If you have any questions, please contact Yunhe Huang at or 02 9385 3025.