Longitudinal study of adults with autism

Researchers at the University of New South Wales and Autism CRC are seeking volunteer research participants for the Australian Longitudinal Study of Adults with Autism (ALSAA) to learn about life in adulthood for people with Autism/Asperger’s syndrome. We are looking for adults who are 25 years or older, who have a diagnosis of Autism spectrum disorder/Asperger’s syndrome, and/or their main carers to take part in a questionnaire study. We are also seeking adults without autism to take part as a comparison group. The questions will be about many aspects of life including mental and physical health, employment and other day occupations, behaviour, emotions, coping, memory, friendships and health service utilisation. The study aims to better understand the mental and physical health, employment and overall wellbeing of adults with autism. The results of this study will be used to inform services and guide policy development.

Watch the video to meet the researchers and find out more

Would the research project be a good fit for me?

The study might be a good fit for you if:

  • You are an adult and you have Autism/Asperger's syndrome
  • You are a carer or family member of an adult with Autism/Asperger's syndrome

What would happen if I took part in the research project?

If you decide to take part you would:

  • Complete a questionnaire either online or via a paper copy. It might take 2 to 3 hours to finish, but you don't have to do it all at once.
  • Complete a second questionnaire about two years later if you want to.

Will I be paid to take part in the research project?

There are no additional costs associated with participation in this research project, nor will you or the participant be paid. Involvement in the study is on a voluntary basis, it's your choice and you can withdraw at anytime.

Please complete this short survey to express your interest

Study duration

This is an ongoing research study.

If you are interested in participating in this study, please contact:

Kitty or Jane, 02 9385 0620, autismcrc@unsw.edu.au

Browse the newsletter updates for more information:

Autism CRC Project: Longitudinal study of Australian autistic adults