Longitudinal study of school leavers with autism

  • Are you on the autism spectrum and aged 15 to 25 years?
  • Are you the parent or guardian of a young person who is?
  • Are you a non-autistic person aged 15 to 25 years?

If you answered yes to any of these questions, you may be interested in participating in this study.

What is this study about and who can participate?

The transition from school to adult life for autistic people and their families is one of the most difficult periods to traverse as services are fragmented. However, this period remains poorly coordinated and not well understood. The main aim of this longitudinal study is to understand the process of transitioning from school to adult life for Australian students diagnosed with Autism Spectrum Disorder (ASD) and their families.

For this purpose we are inviting young people with an autism spectrum condition who are in their final year of school, or first year post school (aged 15-25) and their parents or guardians, to participate in a longitudinal survey. We would also like to understand how students who DO NOT have an autism spectrum condition transition from school to adult life in order to understand the unique autistic profiles and issues associated with this transition period.

What will participation in the study involve?

As a participant, you will be asked to complete one survey when you first agree to enter the project, followed by a survey 12 months later, and again 24 months later.

  • If you are a young person you will be asked to complete questions about yourself.
  • If you are a parent of young person you will be asked questions about yourself and your child, including questions about your wellbeing.

You will not need to complete all of the survey questions at once; you will be able to stop and resume filling out the survey as long as you complete the whole survey within one month of starting it.

The survey can be completed online or as a hard copy paper booklet, whichever option is more convenient for you.

Study duration

The project will be recruiting new participants into the project until June 2018.

If you are interested in participating in this study, please contact:

Dr Lauren Hollier, SASLA@latrobe.edu.au

Autism CRC Project: Longitudinal study of Australian autistic adults