Australian Longitudinal Study of Autism in Adulthood (ALSAA)

Published August 2022

The majority of autism research has focused on children. The aim of this longitudinal study, which started in 2015, was to describe the health and wellbeing of Australian autistic adults.

The ALSAA gathered data from autistic and non-autistic adults aged 25+ years old across two time points. It also collected information from family members and carers. The study has yielded many important insights into the experiences of autism in adulthood, including health and health services, employment, diagnosis, quality of life, loneliness, leisure participation, disclosure, the wellbeing of carers, activities of daily living, intellectual disability and physical activity.

We would like to thank the many participants who gave significant time in completing the surveys for this study.

Longitudinal data from this study will be made available for approved future research purposes through the Australian Autism Biobank in late 2022.