Uncovering the hidden histories of late-diagnosed autistic adults

This co-produced project sought to preserve the stories of late-diagnosed adults and the lives they led before and after their diagnosis. The project team of autistic and non-autistic researchers co-designed and co-produced a study using oral history methods to investigate the life stories of 28 autistic people, aged between 45 and 72 years from diverse parts of Australia. It serves to preserve their stories of the lives they led before and after their diagnosis and to inform ways to support autistic people.

Aims:

  1. To conduct oral history interviews with late-diagnosed autistic adults to document their lives lived before and after their diagnosis.
  2. To understand how these individuals survived, thrived and potentially suffered without the support and community that often comes with an autism diagnosis.
  3. To use this information to inform contemporary policies and practices to support the lives currently lived by autistic people.
  4. To prepare these interviews to allow for future digital archiving, and therefore permanent access for future generations and communities.
  5. To produce an oral history protocol to enable future contributions from within Australia and internationally.
Project Leader(s)
  • Liz Pellicano,
Project code
0.013RI