Participatory Autism Research within Autism CRC and beyond

The long-term aim of this research is to enhance the uptake and quality of inclusive research practices within the Autism CRC and autism research internationally.

This strategic project aimed to:

  1. conduct a review of the nature and extent of autistic and broader autism community involvement in Autism CRC projects to date to gain people’s perspectives of such involvement, both the potential benefits and challenges, situated within the context of the Autism CRC’s journey of engaging end-user organisations and inclusive research practices, including its initiatives directed to the promotion of co-production
  2. develop an evaluation framework for participatory autism research and (pilot) test the efficacy of that framework in 1-2 Autism CRC funded projects
  3. review and revise (as necessary) the co-production mechanisms of the Autism CRC (e.g., the Inclusive Research Practice Guides and Checklists) in light of the findings from aims 1 and 2
  4. contribute to other work on social and ethical issues that are of significant concern to the autistic and autism communities.
Inclusive Research Guides

This project produced an updated set of inclusive research guides. The Participatory and Inclusive Autism Research Practice Guides contain an overview of important participatory research principles, concepts, and practices, followed by six focussed guides addressing both participatory and inclusive research. 

The Participatory and Inclusive Autism Research Practice Guides are available by registering at our resource access page.

Project code
Project Leader(s)
  • Liz Pellicano, Macquarie University
Project status